Monday, April 20, 2009

Read, Right and Run, well maybe walk

We celebrated my "vacation" weekend. It was Read, Right and Run - 26 books, 26 good deeds and 25 miles, with the last 1.2 miles at Forest Park on Saturday morning with many thousands of other kids. I think I heard 57 schools participated. We were toward the end of the starting group, and my wonderful, intelligent, but not very speedy kid walked the entire course. He strolled it more correctly. He was the absolute last kid to finish, moseying with one of the volunteers on her bike. I had to drag him jogging the last 1/10 mile or so. He walked it last year, with the principal jogging & dragging him the last little bit across the finish line. "Mom, do I have to do Read Right and Run next year?" "No, Son, you do not. I didn't make you do it this year. I just made you finish what you started."

Sunday was spent at Ruth Bruns 80th birthday party. She is Evonne Timmermann's mom. Evonne and Ruth were the only people to babysit Colby. When Evonne got a job at WashU, I had looked at the city's list of babysitters enough that I decided I was done. I would be the babysitter because it was easier than trying to find one in this town. That still hasn't changed. Evonne passed away unexpectedly about 18 months ago, but I still see her in my life and miss her. Every time my kids eat at her picnic table, or play a marble game from her...

Colby would like to buy a bobcat, or maybe a combine. Anyone got one for sale with his budget in mind? "Mom, when I get bigger, can I drive that and that and that? Then I'm gonna drive a combine. And a tractor. And a dump truck." Right after you learn your colors, numbers and letters. He has no interest in any of it. The speech teacher gets about 4 words out of him on task, and then he's off on his own tangent with no more cooperation from him. If 50 is the new 40, then 3 must also be the new 2.

Tom survived his first day shift in a while. It is good to have family meals again, and help with bedtime, and a million other things you lose on evenings. We still have no diagnosis, but he is coughing less and less as time goes by. He's still tired, but I can live with that.

Wednesday, April 8, 2009

Spring Break 2009

Evan and Flat Evan



at the Magic House

I have been teased a bit for not updating my blog in a week...

Tom came home on Thursday from the hospital. We still have no diagnosis, but they must have rearranged his lymph nodes enough that they aren't sitting on a nerve. Yes, he still coughs wickedly, but not as continuous as before. We won't have biopsy results until about May 1. He has worked the last 3 days and felt tired but not horrible. I'll take that - it really is an improvement.

I worked the weekend, and the boys had a great time with friends all day both days - thank you Rose & Kathleen. Nobody moved before 8 am Monday morning :). You wore them out quite well!

It is Spring Break in our town, and we have played hard. Monday afternoon was swimming at Korte - the pass expires next week, so we have to fit in pool time now. Tuesday was The Magic House, and it was indeed magic. It has doubled in size, and is way cool! My mom came to spend the week with us and fell Tuesday morning. She didn't have such a great time as her knee was hurting badly, but the boys did. Today was the Science Center - Sue the T-Rex and the planetarium. We left Grandma home with ice packs and Tom - what a pair! - and Colby with G'ma & Papaw, so it was just Evan and I. It was a nice "big kid" day, but having seen Sue in Chicago, we weren't as impressed here. Tomorrow is Purina Farms with all their cute loveable huggable but not bring-home-able baby animals. I've never been there, and E is taking a friend, so it should be great fun. By Friday I'll be ready to not leave the city limits!

One of my friends is encouraging Weight Watchers again, without the payment plan - on our own. I can do that. Time for Tom and I to make some better choices in our lives. He has lost 20#, but I swear he pushed it over to my side of the bed in the dark. I don't do stress well. I do donuts and Mountain Dew really well.

Wednesday, April 1, 2009

Biopsy done

Yeah, we have finally ruled out lung ca or lymphoma! The non-cancer options are:
sarcoidosis - chronic ani-inflammatory disease treated with steroids
histoplasmosis - weeks to months of antibiotics
fungal infection - weeks to months of anti-fungal meds

Sarcoid is the ugliest of the choices, but even it is not bad for the spectrum of diseases at Barnes. We won't be able to narrow it down from there for several weeks - things gotta grow in petri dishes - but at least now it is growing. Tom has a two inch incision at the base of his neck, and had no problems with the surgery. He is tired and emotional, but the drugs and stress can make you a little PMS-ish. We are here for the night again, which isn't a bad thing. He can rest, and go home to little boys tomorrow.

One prayer is answered as we travel this road together. Thank you for the prayers, phone calls and mental health checks.